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Subject: ISPNO Abstracts 2008
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mkees73
Posts:13
Posted:06/06/2008 5:18 AM
ISPNO abstracts are on-line, and include a number of presentations/papers about ATRT, including the latest data on the IRS-III protocol. 

The website is:
http://www.ispnotest.macwebsitebuilder.com/f/ISPNO_Abstracts1.pdf

Sear under Rhabdoid and the abstracts will come up.

Michelle, m/o Andrew
owensmom
Posts:123
Posted:06/06/2008 12:35 PM
Are you going to Chicago for the ISPNO?  We are planning on going down for the family day and maybe a day before or after.  It all depends on when Owen is having surgery.  We won't know until the 19th of June. 
Cyndi (Owen's Mom)
mkees73
Posts:13
Posted:06/06/2008 8:31 PM
We are thinking about going to ISPNO.  It will depend on how Andrew is feeling.  He has Week #33 on June 17th, which is inpatient with Doxyrubicin & Cyclophosphamide for 72 hours.  This particular mix has hit him hard in the past, taking the full 3 weeks to rebound.  We won't know for sure about ISPNO until the week of the conference.
thediehl
Posts:1
Posted:06/20/2008 5:15 AM
Michelle - I am friends with a family whose son was just diagnosed with a Rhabdoid tumor. I have tried to look up and understand the IRS-III protocol, but am confused. Is it high dose chemo? Is it 3 different drugs? I am trying to help the family research their options. Can you help me? Thanks so much- Stephanie
mkees73
Posts:13
Posted:06/20/2008 4:24 PM
Hi Stephanie, I'd be happy to talk more about IRS-III, and I also have a PDF copy of the protocol. Please email me directly at mkees@umich.edu and I will give you the info. Mattea was also on this protocol and Tara Lesorgen is a great source of info. She is on this chat board.
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