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owensmom
Posts:123
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Posted:06/12/2008 3:41 AM |
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For short the ISPNO. It is in Chicago there is a family day July 2nd. Here is the schedule for the family day.... It should be an interesting day. Owen and I are planning on attending, I think you need to register by June 18th, it is like 35 a person I think. The website is
www.ispno.com/page/page/4477724.htm
You will be able to meet three of my personal heros....
Owen, Dr. Stu Goldman and Dr. Tadanori Tomita.
8:30 Check-In….Coffee…Folders…Information Exhibits Meet and Greet Welcome Activity
9:30 Welcome: Dr. Tadanori Tomita & Dr. Stewart Goldman, Co-Chairs, ISPNO
9:45 Ask the Experts (Q&A panel with written questions)...facilitated by Drs. Tomita and Goldman
With several Internationally Recognized leaders in Neuro-Oncology
10:45-11-00 Break
11:00 Transitioning into Life/Independence/Adulthood (Break Out Sessions )
1. Childhood/Education (parents)...Speaker: Jill England, PhD Inclusive Education and Reintegration Specialist
2. Independence/Adulthood (survivors)...Speaker/Facilitator: Barbara Lockart, Pediatric Nurse Practitioner, RN, MSN, CPNP
12:00 Luncheon Roundtable Discussion...Parents, Survivors, Professionals
01:15 Complementary, Alternative Medicine & Research Panel...Elena Ladas MS, RD, Integrative Pediatric Medicine, Columbia
2:15 Outreach & Support for Families...Jeanne Young, President, Childhood Brain Tumor Foundation
...Joe Fay, Executive Director Children’s Brain Tumor Foundation
...Susan Weiner, Vice President, Children’s Brain Tumor Foundation
2:45-3:00 Break
3:00 Family Voices for Research and Treatment Options...Loice Swisher, MD, parent
3:15 Quality of Life--Opening to the Possibilities...Diane Traynor, Pediatric Brain Tumor Foundation, Michelle Higa, Survivor
3:45 Bringing it all Together…Quality of Life…Treatment to Transformation: The Global Perspective (Perspectives of Survivor, Parent/ Family/Medical)
4:30-5:30 PM Wine and Cheese Reception with the Experts
Hope some of you can make it, we live about an hour and a half so it is easy for us to go, it would be nice to meet a few more families who have been through all of this.
Cyndi (Owen's Mom)
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MatteasMama
Posts:11
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Posted:06/12/2008 10:52 PM |
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Mattea, Mike, and I will all be there--possibly some extended family, too. Hope to see as many of you there as possible!
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mkees73
Posts:13
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Posted:06/13/2008 3:05 AM |
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Cyndi & Tara,
Are y'all taking Owne & Mattea to the events, or what will you be doing with them?
Michelle, Andrew's momma
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MatteasMama
Posts:11
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Posted:06/13/2008 4:00 AM |
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We're bringing Mattea and hope to tough out as much of the day as possible. 
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owensmom
Posts:123
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Posted:06/13/2008 12:04 PM |
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I am bringing Owen, I looked over the schedule and we will be in and out all day, there are only a few things I want to see/do. Owen is a pretty patient little guy, well as long as I have my bag of tricks/dvd player, crayons, books, guys,magnets, and stickers with us.
Cyndi (Owen's Mom)
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