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nmga15
Posts:1
Posted:09/30/2007 10:28 PM
My son Aaron David Guiswite is on the angel page. He died almost 2 years ago. In fact in 2 weeks it will be 2 years.  I watch the site everyday to see how many more children are diagnosed with this terrible disease.  Im just seeing if there are any parents out there who have lost their angel to this who can give me ideas on how to cope with each passing day better than I am now.   I miss him so much as Im sure all of us who have lost our children to this do.  I have named a star after him! That was my Christmas present last year. Anyway Im just trying to find out how other parents handle this loss Thank you
mkgoldstone
Posts:16
Posted:10/01/2007 2:03 AM

Hello,

I lost my son, Christian, almost 4 months ago. I guess I am coping ok, if there is such a thing. I keep on hoping that things will get easier, and perhaps they do. Moreover, I just think things become a little more different - a little bit farther from his passing, and our lives together.

When Christian first fell ill, we were in the process of selling our house and building a new house. We closed on the house we were selling the first week Christian was admitted. The timing of his illness was a godsend in some ways - I don't if I could have faced the nursery we had so lovingly decorated only a year and a half before. Our new house is sort of a symbol of carrying on, I guess. The house will have one wall with lots of windows, which I plan to fill with all of the plants we recieved at the funeral - taking care of the plants is kind of cathartic - I miss having someone to take care of so badly.

Ryan's dad and I are getting married - on what would have been Christian's 2nd birthday, October 13th, in 2 weeks. Planning the wedding on a dime, and in a rush has been a great distraction. It will be nice to have another reason to celebrate on the 13th - rather than sitting around and dwelling on all that we will miss.

I am a middle school art teacher. My students are wonderful - even the naughty ones - they keep every day fresh and new, and it was great to return to them in September. On a sad and scary note, one of my sweet 8th grade girls was diagnosed with a lump in one of hers lungs last week, she is scheduled this week to have it removed...the doctors are not very optimistic, from what her mother says. Another was diagnosed with metabolic issues and requires an organ transplant, yet another was hospitalized after being run over by a car...dealing with these situations has been very difficult, and at the same time, I feel more able to deal with them than I could have ever possibly been a year ago. The year Christian was born was called "the year of the baby" at our school, as 7 of us were pregnant. It is difficult to hear stories of my coworker's children, since we are now childless. We do look forward to having more kids in the very near future, and that helps to keep us going.

And some days are just hard. I start thinking, or look at pictures, or hear other's struggles, or learn of another young victim, and it just hits. And I cry, and cry...which is ok. It reminds me that I am human, and that I can still feel. I'm not numb, which I was for a time, and that was much worse. Doing fundraising and lobbying work for Curesearch and St. Jude's has been helpful, although sometimes I just get very angry with Virginia's senator's for their failure to co-sponsor the impending bills that would give desperately needed money to childhood cancer research. Venting on my caringbridge site now and then also helps. There is a tear stained printout of photos of Christian's happy smiles, and piercing dark eyes that I regularly glance at beside our sofa. It's hard to believe that little warm body is no longer alive to love and hug...

All in all, I would say the changing of old routines, and setting of new goals - things to look forward to, has been our "medicine". That and our faith of course - which has been tested, but overall gotten stronger.

Don't know if that helps, but it helped me to vent a bit, so thank you for asking!

Marcy

Tracy
Posts:41
Posted:10/01/2007 5:44 PM
Hi;
   I lsot my baby girl 6 months ago and I wish I had some advice to offer you on how to cope with this pain that we feel. My daughter would have been 1 in June which was only 3 months after her passing and it was a very very difficult time but I was able to focus on the fact that that day was the day I was blessed with her. That joy of the day she entered the world is what got me through that day. The holidays are coming up and I am absolutely dreading them as I was looking so forward to Christmas this year. I know I'm thinking ahead but when I look back on her birthday I think of how I found the positive in it but what positive does one find on the date of their child's passing? I think we all deal with things differently and definitely in our own time. I began counseling a few months ago and I thought the guy was a moron because of some of the "stupid" things he would say and he would constantly refer to the "grieving map". Well in my opinion no one has the right to make a such a map and no one can say what the "right" way or the "wrong" way or the "normal" way is to grieve. I did find another counselor cause I just wasn't doing well on my own and she has been great for me. I'm not a person that likes taking medication but I agreed to try it and I was lucky enough that the 1st one she put me on has actually helped me. It doesn't take away the pain and it doesn't stop me from missing or wanting my baby girl back but it has helped me to "come out of my hole". I had secluded myself from the outside world and even in my own house away from the rest of the family. I'm not 100% and probably never will be but it has definitely helped me and I continue to just take things one step at a time.  Please understand that I'm not saying medication and counseling is the answer all I'm saying is that it has helped me, and  going back to what I said before, every one grieves differently, heals differently and all in their own time. Do you have some funny pictures of Aaron? I find when I'm really in a bad spot I think of or look at a picture where my daughter is making "our funny face" and there's another one that always makes me smile no matter how hard I'm crying at the moment. I also find a little comfort in talking to her, writing her letters or even a poem. You have to find what's going to help you, it may be 1 thing it may be a combination of several things. I hope that you can find some thing that will help you through. I'll keep you in my thoughts and if you ever need to talk feel free to contact me if you'd like.
Take care and God bless
                                Tracy
                      autumn@usa2net.net
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