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| a very sad mom |
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Posted:04/16/2006 1:09 AM |
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as my angels one year anniversary grows near i find myself so saddened by the fact that we keep losing our children (and family members) to this monster just from information on the rhabdiod site there were 21 that lost the battle last year
16 that have passed since bradley 2 within days of each other this week and so many more still trying to fight when will it ever end
please understand i am writing this not to make people sad but just because i am so sad that we are losing the battle over and over again and sometimes i just have to write about it get even more people to pray for this children and families that really need the help now
please pray for tyler as he makes his transition and pray for his family http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=tylermoen
also pray for taylor who also has run out of medical options www.caringbridge.com/wv/taylor
and for haydens family who will need support at this tough time http://haydenmoore.com/
and ashton bass who also recently passed
http://rhabdoidkids.com/AshtonBass/AshtonBass.html
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| Anonymous |
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Posted:04/16/2006 3:36 AM |
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Please don't loose hope. Read Jillian's story, she is proof that there is always hope. Keep believing and never loose hope, we will beat this monster.\
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| Michelle Schwartz |
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Posted:04/17/2006 3:54 AM |
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I'm sad right along with you. This is just not fare. It's been 8 weeks since Kaitlyn got her wings, and it just does not get any easier.
Sending lots of prayers for those that have just passed and those that are drawing near.. May they all play together in heaven and watch over the families they leave behind... \
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| Jen Brandis |
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Posted:04/20/2006 1:23 AM |
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Hi, this is Jillian's mom. I had no idea that Jillian was being mentioned on this site. Sorry, for not writing sooner! Jillian had a very rough road fighting AT/RT, but she just finished her last dose of chemo (on 4/12). She is doing awesome. Yes, we have a very, very long road ahead of us (eating again, walking again, teeth problems, etc....) But, God has granted her with the gift of life. She was treated at Children's Hospital of Philadelphia on the Boston Protocol. It included 17 rounds of intense chemo and 6 weeks of local radition. As of today she shows no evidence of disease. Her first post treatment scan is scheduled for 5/2. Her website is www.caringbridge.org/pa/jillian
feel free to visit anytime!
Hang in there everyone.....we can do this!!!!!
Love to all,
Jen\
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| choctawbroad (Doris) (guest) |
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Posted:08/14/2007 2:16 AM |
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HI JILLIAN, I PLAYED GIN RUMMY ON POGOG WITH YOUR GRANDMOTHER AND SHE REALLY BEAT ME. SHE AND I HAD A GREAT CHAT, NEVER HAVE MET EACH OTHER BUT WAS SO EASY TO TALK WITH HER. I SHALL PRAY FOR YOU AND SO GLAD TO HEAR YOU ARE DOING BETTER. I WILL SOON HAVE TO LEAVE AND PUT MY DOG OUT TO POTTIE. SHE IS 2 YRS OLD AND A SCHNAUZER AND SHE SLEEPS WITH ME. SHE LOVES TO CUDDLE CLOSE!!! TAKE CARE NOW AND KISS GRANDMOTHER. SHE LOVES YOU. SINCERELY, DORIS
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